Posted by: Ken Wheatley | July 16, 2009

Houston Results and USC Responds

Things went very well today. It took many hours and we missed our flight home, but it was certainly worth the time.

Dr. Kim certainly lived up to his reputation. Very much in command of this field. Very confident, in a reassuring way. He spent a lot of time doing research and talking with us. Very impressed with the effort that he put in. He’s the guy that was responding to Sheila’s emails at 1 in the morning his time.

So there are many options to consider. There’s one trial in particular (called Battle) that is only being run at MDA and Vanderbilt, so he’s checking to see if Sheila qualifies. He actually had another patient today who flew in from Calgary to seek treatment under the same trial. But if she doesn’t qualify there are others to consider, so the homework begins.

And we heard today from USC that Sheila is qualified for their trial, so that was a huge relief for her. Nice to have a period of good news for a change. We have a week or two to make the decision. So once we hear back from Dr. Kim either tomorrow or next week, we’ll have a better idea of what options are truly open to her.

Closed out the day by having a great dinner at Houston’s restaurant – the first meal Sheila has had in 24 hours. Progress…

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Responses

  1. Sheila and Ken,

    We are both so excited to hear your wonderful news! Can’t wait to see you soon, back here at home!

    All our love,

    Joni and Steven

  2. Dear Ken,

    It has been such a long time since we spoke and I retired from Sony.

    We retired here because if it is possible this place spoke our names.

    The last we spoke, I didn’t even know that you were dating –much less married. I am so very heartsick that your wife has been so ill. There are no “good” words to express have very painfull your lives must be battling this disease. Jed’s mother spent 40 years fighting it and died of old age at 88, but it was a real struggle. From the picture on this blog, your wife is gorgeous. Tell her that you are a gorgeous man too with a heart of gold–an astonishing standout in the Sony crowd. Miss our talks and your honesty.

  3. Hi Barbara,

    A lot happens in a few years.

    I’ve known Sheila for almost 17 years, but we didn’t start dating until 2003, and we got married in June 2008 – 6 months after she was diagnosed. So needless to say, it has dominated our lives ever since January 2008. And although she doesn’t have that mane of beautiful blonde hair anymore, she is an incredibly beautiful woman. Just look at those eyes and that smile. She’s the best woman I could have ever asked for in my life. She’s perfect. So it makes what we’re going through very, very difficult.

    As for your move to the south, I had a similar experience the first time I visited Utah. Some places just have a magical aura about them. Or maybe, in my case, it was the altitude. 🙂 But I’m glad you and Jed have found a place that “speaks” to you both. That’s a rare find.

    We’ll keep in touch….


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